Roxann Fredette (@chronically.roxii)

But yet it can’t possibly have to do with the fact that they clicked it to my intestines this time ….. being a women in pain or with symptoms your never taken seriously … and when your health fails some how it’s either your fault or it’s mental … and you go to the one place that’s supposed to help & they just completely brush it off … #medicalgaslighting #negligence #chronic

How I got treated in the ER as a disabled women who needs a wheelchair … #ambulatorywheelchairuser #wheelchair #ER #medicalgaslighting #bully

#allergy #antihistamine #mastcellactivationsyndrome #hypoglycemia #nausea

And then feel like you’re getting sick on top of it .. great .. my body already is too weak for more flares & my MCAS & pots is just going crazy right now even after iv fluids and I feel horrible 🥴.. I hate this .. a virus is the last thing I need #chronicallyill #virus

I figured I would ask before I try and figure out how to buy it lol #tegaderm #njtube #tubie #tubielife

People often ask me how I’m so strong & so positive with everything going on .. because you have to be otherwise you will flare more & I focus on how my life will be one day when I’m better … and on top of that .. I do sometimes have crash out days … like today .. sometimes it’s needed just to get through all of this crap .. #healthcare #medicare #disabled #crashout #prayers

It’s crazy that I have to choose hydration/food right now even if it’s going to trigger a reaction …the things we have to do when we are chronically ill … I’m flairing so bad right now I’m so miserable … and I have an important appointment in 3 days idk how I’m going to get out of this flare in time 😭 #mastcellactivationsyndrome #pots #flare

#mcas #pots #chronicillness

Because right now I mentally can’t .. I tell myself it’s everything else .. in order to protect myself .. #mecfs #mecfsawareness #myalgicencephalomyelitis

My hair needs a good cut bad , when you spend 22 hours a day in bed for me I often keep my hair up and becuase of that it’s pulling and damaging the hair and thinning it out and causing bold spots and the longer it is the worse it gets .. so I cut it myself a few weeks ago 🤭 & hopefully at some point in a few months I’ll be healthy enough for my cousin to come & cut it ❤️ #chronicillness #haircut #bedbound

I am not “skinny” or a “healthy weight”.. I am extreamly malnourished … and anyone of any weight .. can also be malnourished …I feel like this needed to be said .. idk why there is so much body shame in this world but I’m tired of it .. weight shouldn’t matter .. as long as you’re healthy that’s all that matters … I am not healthy this is malnourishment .. #weightloss #chronic #tubefed #nutrition #bodyshaming

I love my nurse she’s so sweet❤️ & thankgod I didn’t have to get the door … again lol #homehealth #nurse #chronicillness #mcas #solicitors

I see all those videos about “girl grip” on here & it’s so true .. because this is me every morning ..🤭 #girlgrip #funny #chronicillness #tubie

The cutest little keychain that has been on my bag for over a year🍒 .. & anytime I switch out my bag I put this on each bag .. one of my favorite TikTok shop purchases💙 from @IRIS & RAINBOW #bagcharm #irisandrainbow #keychain #cherries #tiktokshop

I swear My life revolves around … taking scheduled @Zyrtec .. know matter where I am .. #zyrtec #mcas #mcasawareness #mastcellactivationsyndrome #allergies

🥴 #morning #reaction #mcas #mastcellactivationsyndrome #allergy

This is absolutely wild to me .. when your at risk for refeeding syndrome but yet they forget to put lab orders in or take forever & you have to hound them over and over again everytime after each hospital admission .. this is exhausting … #tubie #tubefed #chronicillness #labs #healthcare

I’ve watched twitches , Casper , Halloween town , hocus pocus .. what am I missing ? #halloween #halloweenmovie #disney #movies #falltime

I HATE stink bugs .. sooo much 🥴 Part1

Where can I get ivabradine compounded without dyes or fillers ? #ivabradine #pots #posturalorthostatictachycardiasyndrome #compoundingpharmacy #mcas

Lmao the way I just jump at isshh that doesn’t even make sense… all day long lol #pots #posturalorthostatictachycardiasyndrome

What can I say .. I’m so afraid of bugs 🥲🤣 🐜🪲 #bugs #stinkbug #yuck #afraid

#exhaustion #mastcellactivationsyndrome #bedtime #icepack

Home from the hospital & now I need to rest ❤️ #tubielife #mcas #mcasawareness #mastcellactivationsyndrome #malnourished

This feeding tube is way bigger than my last one 🥲 #njtube #tubie #chronicillness

For everyone who told me to try unclogging my tube with soda … guys I did lol Literally did soda and warm water and taking it apart for several days nothing worked my boyfriend even tried and it shot across the room lol … the ER tried warm water and soda .. nothing .. the second ER tried soda & nothing … the third ER tried the de clogger 3 seperate times in a day & the final time it exploded all over my face lol and still nothing .. Only reason I had to get it replaced because it wasn’t budging at all .. enjoy this video of me using all my energy the night before to try and unclog it hoping that I didn’t have to go back to the ER lol #njtube #tubielife #chronicillness #mcas

When your only source of nutrition stops working & no one wants to replace it so you go a week without nutrition … #tubielife #nutrition #chronic #mastcellactivationsyndrome

This is way more comfortable then I expected , and it didn’t fade or make me itch ❤️ I just love this time of the year 🎃👻🍁 #halloweentown #halloween #tiktokshop #pumpkin #tshirt

This is why us chronically ill people are always stuck going to the ER because no one wants to help or fully investigate they just quickly get you out and send you home .. just for your dr to not feel comfortable running tests when you have this many symptoms and make you go back to the ER … look out for Par 2 : how I as treated as a disabled women at the ER #ER #hospital