Kit ✨♿️ (@moonlit_kit)

Replying to @𝕷𝖊𝖓𝖆 𝕭𝖊𝖆𝖒🦇 Just a disclaimer, I am not an expert and this is not medical advice 🙌 it is important to speak with a doctor or physical therapist when looking into using a mobility aid to ensure you’re getting the aid that properly supports you, and to ensure you’re using proper form. With that said, I do understand that not everyone has access to these things. If you are in this situation, I highly recommend taking a look at @Janine | EDS OT and Coach ‘s page, they have visual guides on how to use proper form with a cane on their page and they also have a beginners guide to mobility aids in the 🔗 in her B I O 🙌 #mobilityaid #mobilityaids #parttimewheelchairuser #ambulatorywheelchairuser #chronicallyill #chronicillness #chronicillnessawareness #disability #disabled #disabilitytiktok #disabledtiktok

A dynamic disability is a condition where the symptoms, severity, and impact fluctuates over time, oftentimes changing day to day or even hour to hour 🙌 Apologies for the later post, I have been struggling with my mornings lately 😅😖 #dynamicdisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride

Rapid fire reminders for the chronic illness and disability community ✨🙌 #chronicillness #chronicillnessawareness #chronicillnesstiktok #chronicillnesslife #chronicallyill #invisibleillness #invisibleillnessawareness #invisibledisability #disability #disabled #disabilitytiktok #disabledtiktok #disabilityawareness #disabilitypride

I will never understand people who give unsolicited advice and then get MAD when that advice doesn’t apply or someone just isn’t interested 🤣 #chronicallyill #chronicillness #disability #disabled #unsolicitedadvice

Replying to @BookishBunny I hope this helps! I really like Human Health bc it’s one of the few apps I’ve found in a long time where the free version is complete, has tons of useful features, and can actually stand on it’s own without NEEDING the paid subscription. Human plus has some really cool features but they are the cherry on top, which is exactly how I like it to be ☺️

Sometimes it’s easy to forget this stuff isn’t everyone else’s version of normal day to day struggles 😅 #pots #potssyndrome #chronicillness #chronicallyill #disability

If I had known getting ready would be ALL the energy I had for the day I would’ve just taken today on easy mode 😭 #chronicallyill #chronicillness #disabled #disability #disabilitytiktok

Turns out while I am fairly descriptive when talking about my symptoms, I’m not always the most specific 😅 I thought “acid tears” was pretty accurate but I can see why he would’ve thought I meant just my eyes 🤣 #mcas #mcasawareness #mastcellactivationsyndrome #chronicallyill #chronicillness

Summer: POTS angry, hEDS happy October slide: Everyone’s mad Fall: POTS finally has some relief but barometric pressure changes still cause random flares, hEDS is starting to get angrier Winter: POTS is so so happy, hEDS angrier than can be So so fun 😅 #chronicallyill #chronicillness #pots #heds #octoberslide

Like no, me filming a minute long video or playing games that I could literally put down for weeks with no retribution is NOT the same thing as being able to hold down a job 🤦🏻‍♀️ #chronicallyill #chronicillness #disabled #disability #disabilitytiktok

I NEED this flare up to chill soon 🤦🏻‍♀️ sending all the love and good vibes to anyone else who’s struggling right now 🫶 you are definitely not alone and I hope we can all get a little relief soon 😭🤞 #chronicallyill #chronicillness #disabled #disability #disabilitytiktok

Flare ups happen, sometimes you can do everything in your power to prevent them and they still happen. If you’re flared up and struggling with your symptoms right now, remember that you are allowed to rest. You’re allowed to listen to your body and take the breaks when you need them 🫶 it doesn’t make you lazy or a bad person to listen to your body’s needs #chronicallyill #chronicillness #disabled #disability #disabilitytiktok

Sending love to everyone who’s been affected by the recent chronic illness discourse floating around 🫶 if you need an ear to vent to, feel free to vent here, I’m keeping a close eye on this comment section so I can respond to everybody ❤️ #chronicallyill #chronicillness #disabled #disability #disabilitytiktok

Hey guess what, just because the light turns green doesn’t mean I can just gun it straight into a family of 4 in the crosswalk 🤷🏻‍♀️🤦🏻‍♀️ #baddrivers #baddriver #rant #rantoftheday #irritated

Here soon it’s gonna be nothing but snow boots and sweatpants so I gotta live it up for every last second I can 🤣 thankfully at least this is where my constant overheating from my POTS finally comes in handy 🙌🙂‍↔️🤣 #grwm #getreadywithme #pots #chronicallyill #chronicillness

Replying to @AIM.4.Love If you know of any creators I haven’t mentioned that you’d like to uplift and give a shoutout to, absolutely feel free to put them in the comments! 🙌 I’ll tag all of the creators mentioned in this video below 🥰 @CrutchesAndSpice.com|CRIPPLED @Diversity in Neurodiversity @Alina Gene Lee @Thought Knots @Jessiara Marriott @camille 💘 | just my life @✨Kay Jay✨🦋👩🏾‍🦼‍➡️🇱🇷 @Extrovergent - ADHD Brain @emilia suárez @Shan 📖🫀🧂 @noah 👨‍🦽🦈💙 @Quella 🐙 ME & LC Educator 💙 @abegail 🍂🐌🧘🏽‍♀️ and omfg I just realized I forgot @finchisnotonfire 😭 amazing creator and has taught me sooo much 🙌 #disabled #disability #disabilitytiktok #chronicallyill #chronicillness

It’s honestly quite rude if you ask me #dysautonomia #dysautonomiaawareness #octoberslide #chronicallyill #chronicillness

I fully went into this in the mindset of “yeah why are they in the same month like guys of COURSE I’m FULLY aware of my pots right now 🙄😅” and mid video realized actually wait I like this idea 🤣🤣 if I have to be abundantly aware of my pots right now then so do the rest of you! 🫵😠🤣 #dysautonomia #dysautonomiaawareness #dysautonomiaawarenessmonth #pots #potsawareness

Replying to @✨️✨️✨️✨️ It has defintiley come in handy especially bc it is right by a bathroom so if either of us are sick or keep having to get up multiple times in the night we’ll just switch over to the other room so we don’t disturb each other 🥰 most of the time though, we do share a bed and we’re super lucky to have one right now that lets us adjust our sides to be however soft/firm we want (which is awesome bc we are definitely opposite in that respect 🤣 my fiance likes a soft cocoon and I literally can’t do it, my joints will crumple in on themselves 😅) #chronicallyill #chronicillness #disability #disabled #disabilitytiktok

And of course it only becomes more complicated bc it’s not just a mental hurdle but also a physical one 😅 Because of my chronic illnesses, it takes a lot of energy to move. I have to plan MONTHS ahead and make sure to pace my packing in small chunks over a long stretch of time. Even then, with the packing, moving, cleaning, unpacking, and reorganizing, it feels like by the time it’s all done it’s time to pack it all up again and start over with a whole new move 😖 I’m trying to break at least the mental hurdle this time by starting small and working with the areas I’m in the most, hopefully that will help make a difference without too much of a flare 🤞 #chronicallyill #chronicillness #disability #disabled #disabilitytiktok

“It was just a question” “you guys are media illiterate” “it was a joke” “obviously I knew that” like 👀 spamming every defense all at once?? Being oh so smart and not like THOSE white women but oh it was just a question while simultaneously ignoring or belittling every genuine answer 🧐 the contradictions are maddening 😅 #chronicallyill #chronicillness #disability #disabled #disabilitytiktok

What part of October Slide do you struggle with the most?? For me, it’s absolutely the big shifts in temperature and pressure. It flares my POTS up horribly and makes my joints ache so bad 😅 #chronicallyill #chronicillness #disability #disabled #octoberslide

Like I fear this was pretty obvious 🤦🏻‍♀️ #chronicallyill #chronicillness #disability #disabled #disabilitytiktok

When the flare days hit and the absolute LAST thing I want to do is MORE admin work, Human Health helps me stay consistent with tracking my symptoms 🙌 thank you @Human Health for sponsoring this video 💜 #chronicallyill #chronicillness #disability #disabled #disabilitytiktok

I think the thing that bugs me most is the way my lifestyle is framed as a choice. As if I could “just” do this or that, as if I went into this thinking “this will be my life now” and somehow not recognizing the drawbacks 🤦🏻‍♀️ I did not choose to become sick. I did not choose to pull back at work. I did not choose to get so sick I was forced to stop working entirely. What I DID choose was to prioritize my health so that maybe one day I could live a fulfilling life again and enjoy my days with minimal symptoms and pain. I DID choose to go through SEVERAL appointments, specialists, pt sessions, medication trials, all to try to feel better so I could keep going. I DID choose to start posting on social media so I could feel less alone and so other people could see that they weren’t the only ones going through these things or feeling these things. And when that account grew and I could make an income for myself I DID choose to expand my skills and work with the cards I was dealt to make something of what I had. I DID choose to put the work in where I could, to show up on good days and flare days alike, and I’m proud of the community we’ve made together. I choose to challenge myself where I can and rest when I need to bc I have been there when my body gave me no choice anymore. If I could “just” choose to go work or find something more stable, I would. Every choice I have made up to this point has been to that end. But unfortunately we don’t always get a choice in our health, in what we can handle, in how long we can push before we need a break or our body breaks. It bugs me when people talk about these “drawbacks” so lightly and as if I, the person going through them, have no idea. This is not new news for me folks, this is my life 😅 #chronicallyill #chronicillness #disability #disabled #disabilitytiktok

Replying to @Alyssa 🎀 The key to the big bag and having hEDS is remembering that if I stuff the bag full of everything it COULD carry, my shoulder will quickly slip out while trying to carry it around 😅 but anyways, here’s my bag tour! 🥰 #chronicallyill #chronicillness #bagtour #whatsinmypurse #whatsinmybag

Trying to remind myself that it’s not my fault that I’m flared up, that SURE I could’ve been more responsible and taken care of my tasks on the days I was feeling good BUT it’s just as valuable for me to have spent that time having fun for a bit and socializing with friends 🙌 That time wasn’t wasted. Taking that time doesn’t suddenly make me a bad person or lazy bc of a flare up I couldn’t have predicted, and same goes for you 🫶 #chronicallyill #chronicillness #disability #disabled #flareup

Thank you @VIM & VIGR !! 🥰 I’m so excited to style these! #chronicallyill #chronicillness #compressionsocks #compression #kneehighsocks

Classic case of misunderstanding correlation vs causation. When people get better, they don’t have to focus nearly as much on their health and their chronic conditions. And beyond any of that, the choice language being used here is frustrating bc it is a privilege in and of itself to not have your health take up your entire focus. It is a privilege to have a choice in how much you “let” your illnesses impact your life and not everyone has that choice. I am incredibly fortunate to have found medications and treatment options that have helped improve my quality of life, had I not taken those years to slow down, take care of myself, and focus on my health then I honestly don’t know where I’d be today. The most probable answer is that the strain would’ve left me much much worse off than I was to start. If you’re chronically ill and/or disabled and you’ve been feeling down and judged by these think pieces going around, know that you are not alone. Your experience is valid. Resting and taking time to focus on your health is valid. Being so sick that you have no choice but for your health to take up your entire focus is VALID. Everyone is different and this is just MY experience, but even for me, focusing on my health is what helped me improve, it’s not what “kept me sick” 🤦🏻‍♀️ #chronicallyill #chronicillness #disability #disabled #disabilitytiktok

I’ve never been so excited by a haircut but omfg the pain relief AND not having to style it everyday?? HECK YESSS 🥳 #chronicallyill #chronicillness #disability #disabled #haircut