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– video by @shashashayla
, 1.7K views, duration 1:00
Going from having a happy, healthy baby to a baby with a rare progressive…
@shashashayla
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– video by @lex.and.co
, 4.9K views, duration 0:15
My sweet boy #FMLD #raredisease #medicallycomplexchild #axelstrong #neurologicaldisorder…
@lex.and.co
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– video by @killiansjourney
, 1.6K views, duration 9:54
💙Killian Update💙 #KilliansJourney #FMLD #CureMLD #MLDfoundation #UCdavis…
@killiansjourney
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, 561 views, duration 0:53
#makeawish #memories #takemeback #fmld #metachromaticleukodystrophy #mld #raredisease…
@toughlove0804
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, 2.3K views, duration 1:07
#MomsofTikTok #kidsoftiktok #raredisease #metachromaticleukodystrophy #fmld #nocure…
@toughlove0804
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– video by @killiansjourney
, 840 views, duration 3:00
It is extubation day, this is good news but we will be on red alert for the next 24…
@killiansjourney
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– video by @victoriarose_26
, 531 views, duration 0:30
Remembering all the MLD angels gone too soon #FMLD #raredisease #MLDangels #butterflies
@victoriarose_26
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– video by @amberw1dman
, 1.7K views, duration 0:30
Metachromatic Leukodystrophy (MLD) has taken everything from my little girl, and makes…
@amberw1dman
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– video by @my4foures
, 237 views, duration 0:15
Almost 9 years since diagnosis #specialneedsmom #fmld #mld #raredisease #fypシ…
@my4foures
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– video by @autism_momma88
, 2K views, duration 0:40
#fmld we would love to meet other MLD families to share our beautiful angels!!!
@autism_momma88
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– video by @killiansjourney
, 940 views, duration 0:59
Let's talk about it some more... 🤔 #KilliansJourney #CureMLD…
@killiansjourney
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– video by @boymomma12202024
, 2.9K views, duration 1:27
Oh sweet little girl teagan you are missed by so many and loved from many! Rip angel…
@boymomma12202024
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, 405 views, duration 0:10
#LyliesforLybie #FMLD
@amberw1dman
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– video by @silverback7476
, 92 views, duration 0:08
#duet with @kelsinator1113 #fmld
@silverback7476
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, 264 views, duration 0:28
#FMLD
@angela.lienemann