Chronically.Rolling.With.It (@chronicallyrollingwithit)

#chronicillness #Hospital #Tubie #medicine #doctor

I did a thingggg 💇🏽‍♀️ 😂 I chopped off my hair! I did this for a few reasons. I'm in the hospital sooo much that I have to keep it in a ponytail to prevent it getting matted. It also gets in the way of head leads which we need to show my brain waves for my seizures! When I go in for my vEEG this month, this will make my head alot more accsessable for the leads! otherwise we'd be fighting my hair the entire time because its so thick & curly! it'll also make showering with my port so much easier as well. And during seizures I don't need to worry about it matting from my movements. But its also just really cute! I was nervous because this is the shortest hair I've had, but I think it works so well! 💇🏽‍♀️💞😍🥰 #Haircut #Chronicillness #Tubie #thickhairproblems #RareDisease

#Song #Tubie #Medicallycomplex #RareDisease #Chronicillness

Replying to @espresso_depresso1993 #Centralline #chronicillness #medicallycomplex #Tubie #Disabilities

#Hospital #hospitalbag #packwithme #chronicillness #medicallycomplex

#chronicillness #RareDisease #Disabilities #medicallycomplex #Tubie

#Disability #Disabilities #invisibledisabilities #chronicillness #RareDisease

#medicallycomplex #Disabilities #RareDisease #disability #chronicillness

#centralline #chronicillness #medicallycomplex #Tubie #Disabilities

#centralline #Chronicillness #RareDisease #medicallycomplex #Tubie

#Tubie #chronicillness #medicallycomplex #Disabilities #Centralline

#Stich @ezra.g.art #Tubie #Surgery #Hospital #Disabilities

#Chronicillness #Centralline #Tubie #Disabilities #stitch

So honestly, winning 😂🤣😂 #Hospital #Chronicillness #Tubie #RareDisease #Disabilities

#Hospital #Tubie #Centralline #chronicillness #RareDisease

#stitch with @Madeline Tisdale #greenscreen #Disabilities #chronicillness #Centralline

#Update #RareDisease #Tubie #Disabilities #Centralline

Replying to @misskittyxoxo #Chronicillness ##Centralline #Disabilities #RareDisease #Tubie

Replying to @chronically.roxii Some people may be upset with this one.. But its more important now than ever to vote, esp if your a minority or part of a minority... We're fighting to keep rights we fought so hard to have in tbe first place. #Hospital #chronicillness #Disabilities #Vote #humanrights

#Update #medicallycomplex #MentalHealth #RareDisease #chronicillness

Replying to @justaphr5ae #Tubie #chronicillness #MentalHealth #RareDisease #medicallycomplex

#chronicillness #medicallycomplex #RareDisease #Tubie #MentalHealth

Replying to @justaphr5ae#Update #MentalHealth #Tubie #RareDisease #medicallycomplex

Replying to @warriorbunny3 Not respectfully, Shut the fuck up. 😊 And don't leave me another unnecessary book. I appreciate the algorithm boost, but damn 😂 I guess my ED is also what causes my anaphylaxis anytime I eat according to you too? 😂 #Tubie #Hospital #mentalhealth #RareDisease #chronicillness

#seizure #chronicillness #Tubie #RareDisease #wheelchair

And I will manage my G tube without your help. 😂 #Tubie #Hospital #chronicillnessawareness #chronicillness #RareDisease

#Chronicillness #Tubie #chronicillnessawareness #Hospital #Mentalhealth

#Chronicillness #Tubie #Hospital #Mentalhealth #chronicillnessawareness

#Mentalhealth #Tubie #Hospital #Chronicillness #Joke

#Hospital #Chronicillness #Joke #Hospital #Tubie