#phpv
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#phpv videos
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– video by @kylamariecharles
1.8M likes 778 comments 3.8K shares 43K saves
@kylamariecharlesQuickly washing my son’s prosthetic eye and realizing just how far we’ve come 🥺❤️ #microphthalmia #blindinoneeye #prostheticeye #phpv #pfv #retinadetachment #morningroutine #specialneedsmom #persistentfetalvasculature #congenitalcataract #stayathomemomlife #normalmomtok #everybodysdifferent…
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– video by @kylamariecharles
41K likes 72 comments 62 shares 1.5K saves
@kylamariecharlesReplying to @cyrilht554 #greenscreen here’s how his eye looks without (as a baby) It’s smaller and a different color than his other eye #prostheticeye #fakeye #scleralshell #scleralbuckle #retinadetachment #pfv #phpv #microphalmia #cataract #cataractsurgery #babiesinglassses #miraflex
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– video by @mak_wien
4.3K likes 368 comments 260 shares 209 saves
@mak_wienedukasi #slbapembinatingkatnasional #tunanetra #childwithphpv #phpv #lowvision #anakhebat #fyp #smartkid #anakmandiri
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– video by @forrestpickard
4K likes 37 comments 18 shares 65 saves
@forrestpickard -
– video by @kylamariecharles
3.1K likes 9 comments 8 shares 115 saves
@kylamariecharlesLately I've had an influx of messages from new parents just starting on their prosthetic eye journey, saying how they felt so unsure about the future and then stumbling on this clip 🥺 I wouldn't have believed how much of *not a big deal* it is to navigate life caring for a kid with a prosthetic…
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– video by @kylamariecharles
1.8K likes 22 comments 14 shares 85 saves
@kylamariecharlesA little morning hiccup: rubbing a prosthetic eye can turn it upside down and allergy season is ruthless! He wanted to share more about how we handle his prothetic when this happens 🫶 #prostheticeye #scleralshell #microphthalmia #congentialcataracts #persistentfetalvasculature #pfv #phpv #fakeeye…
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– video by @angieburkebledsoe
1.1K likes 27 comments 129 shares 32 saves
@angieburkebledsoeMy son was born with a cataract. At just 3 months old, he had his first of 4 surgeries. Since then, he wears a patch over his right eye to help the left eye gain strength. He started out wearing the patch for 6 hours, then it got decreased to 4 hours, now it's down to 2 hours, PRAISE GOD! This…
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– video by @kylamariecharles
820 likes 7 comments 5 shares 36 saves
@kylamariecharlesA downside of a rare eye is the care that goes along with it can kind of feel like taking a shot in the dark… hopefully we get some answers. 😕 Making these are a fun distraction for us in the meantime. 🥹 I’m so proud of him for wanting to teach others #fakeeye #prostheticeye #microphthalmia #phpv…
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– video by @kylamariecharles
582 likes 10 comments 9 shares 38 saves
@kylamariecharlesReplying to @Jasmine Corona Here’s our eye care kit for all of the scleral shell / prosthetic eye issues that pop up! We keep more supplies in a cabinet at home but this is the bulk of everything! 🫶 #prostheticeye #scleralshell #fakeeye #micropthalmia #phpv #pfv #persistentfetalvasculature…
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– video by @kylamariecharles
473 likes 8 comments 6 shares 36 saves
@kylamariecharlesSorry for all the extra word vomit. 🥴 I wanted to share the story but couldnt figure out how, so this is it… #phtisis #phtisisbulbi #microphthalmia #phpv #pfv #persistentfetalvasculature #fakeeye #retinaldetachment #raredisease #specialneedsmom #storytime #advocatelikeamother #enucleation
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361 likes 1 comment 0 shares 5 saves
@forrestpickard -
– video by @jessikatz
331 likes 23 comments 3 shares 13 saves
@jessikatzReplying to @Tortoisemode420 best of luck 🤝🫡😌 #cataract #glaucoma #phpv #nystagmus #retinadetachments #cornealulcer
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– video by @forrestpickard
328 likes 4 comments 15 shares 17 saves
@forrestpickardShe always so excited to pull it off! #Sadie #phpv #daughter #patch #kidsoftiktok #eyepatch #biggirl #fyp
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– video by @dakota_geer
299 likes 12 comments 1 share 2 saves
@dakota_geer3 eye surgeries, 2 hospital stays and 1 Helicopter ride all before he was 18 months old. #congenitalcaratact #PHPV #distancedance #happyathome #boymom
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– video by @forrestpickard
254 likes 3 comments 2 shares 3 saves
@forrestpickard -
– photo post by @krslnna
Photo post
164 likes 11 comments 0 shares 0 saves
@krslnna -
– video by @ravyniagaming
115 likes 16 comments 5 shares 6 saves
@ravyniagamingReplying to @youjustknowiamright I'm just a unique wonky-eyed girl. #PHPV #letstalkaboutit #rareeyes #educational #educationalpurposes #eyes #blindinoneeye #visionimpairment
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98 likes 8 comments 0 shares 4 saves
@gadelin18 -
– video by @liababi808
99 likes 2 comments 0 shares 0 saves
@liababi808After almost 4 years, my baby has 2 beautiful brown eyes 😭😍👁 He’s so excited for his “eyeball” 😆 #PHPV #RareDisease #MyStrongBoy #prosthetic
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94 likes 4 comments 1 share 6 saves
@gadelin18 -
– video by @forrestpickard
93 likes 2 comments 0 shares 4 saves
@forrestpickardBig Brother helping Little Sister #phpv #patch #eyepatch #patching #Sadie #Owen #bigbrother #littlesister #family #contact #eyeissues #son #daughter
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– video by @forrestpickard
88 likes 3 comments 3 shares 5 saves
@forrestpickardHow we put Sadie's contact in! #Sadie #contact #phpv #patching #patch #eyeissues #biggirl #daughter #kidsoftiktok #family #fyp
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– video by @gadelin18
68 likes 11 comments 1 share 5 saves
@gadelin18Yo tengo un hondureño espectacular 💯 #viraltiktok #hptiktok #phpv #pppppppppppppppp #mexico🇲🇽 #honduras🇭🇳 #vivasinaloa🍅
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– video by @gadelin18
69 likes 9 comments 0 shares 4 saves
@gadelin18Bueno día 🤍🤍🤍#viraltiktok #hptiktok #phpv
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– video by @cholakovsky
68 likes 16 comments 3 shares 1 save
@cholakovskyStaying in the Ronald McDonald room praying our little guys surgery is a success! #preemie #nicu #surgery #phpv #ROP #coloboma #fighter
25 videos
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The 25 videos on this page were posted between and and have 19M views in total. The most viewed is “Quickly washing my son’s prosthetic eye and realizing just…” by @kylamariecharles (17.8M views). They come from 11 creators: @kylamariecharles posted 7 of them, @forrestpickard 6 and @gadelin18 4. The hashtags they use most are #pfv, #prostheticeye, #persistentfetalvasculature, #daughter and #Sadie.